Seòmar agus comataidhean

I refer the member to the answer to question S6W-13707 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

In 2019, we published a Neurological Care and Support – a National Framework for Action 2020-25 , with a vision to ensure everyone with a neurological condition can access the care and support they need to live well, on their own terms.

Since October 2020 we have we have awarded £2.1 million across three rounds of funding to 35 projects by NHS Boards, Health and Social Care Partnerships and third sector organisations working to achieve better outcomes for people living with neurological conditions.

I further refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which contains case study examples of innovative projects we have funded which test and evaluate new models of care. A list of funded projects is also available on the Scottish Government website: Neurological Framework Funding: list of organisations funded - gov.scot (www.gov.scot)

Climate change will increase both the intensity and frequency of storms, flooding and high winds. The recent impact of flooding on our roads and railway is a reminder of the need to adapt our transport network to the effects of severe weather.

Action has been taken but Transport Scotland has identified the need for climate change mitigation and adaptation as a central plank in the National Transport Strategy which sets out the vison for the next decades.

Transport Scotland’s Road Operating Companies are required to undertake a series of activities aimed at improving journey time reliability by minimising the risk of unplanned disruption to the operation of the trunk road network. The Transport Scotland Manual for the Management of the Risk of Unplanned Network Disruption provides direction to Operating Companies on managing and mitigating the effects of disruptive events, such as those caused by weather events like flooding. The manual requires Operating Companies to develop and implement disruption risk processes which are informed by the formal recording of all previous events, as they occur. This includes severe weather related events such as high winds, flooding, snow and ice.

We worked with Healthcare Improvement Scotland (HIS) to facilitate an online learning event in August 2021 to raise awareness of and build confidence amongst health and social care staff in Anticipatory Care Planning for people with neurological conditions.

This was attended by over 280 health and social care professionals working with people affected by neurological conditions, including specialist nurses and Allied Health Professionals.

The event explored how the principles of good Anticipatory Care Planning can be adapted for different neurological conditions, including for purposes much broader than end of life care.

We created a Neurological Anticipatory Care Planning webpage with HIS featuring useful tools for professionals and videos of the webinar presentations: ACP and neurological conditions - ihub | Health and social care improvement in Scotland - Anticipatory Care Planning and Neurological Conditions

We welcome the report by Kidney Research UK and commend its work to support people with chronic kidney disease in Scotland. A number of Scottish Government clinical advisors and partners participated in the roundtable which informed the development of this report.

The Scottish Government is committed to improving care for people with chronic kidney disease through a number of activities which are aligned with the recommendations set out in Kidney Research UK’s report. We are raising awareness of the symptoms, causes, diagnosis and prevention of kidney disease by providing and promoting information on chronic kidney disease for patients and their families on NHS Inform .

Our Donation and Transplantation Plan was published in 2021 and sets out a dedicated priority to increase living donation and reduce the wait for a kidney transplant. This includes a number of recommendations to improve care, including developing resources and information to promote living donation , changing clinical practice in renal units, increasing direct engagement with patients and their families, and developing new guidance on staffing to support living donation.

We also continue to support the work of the Scottish Renal Registry which promotes excellence in renal care in Scotland including audits on the delivery of renal replacement therapy. The most recent report from registry was published by Public Health Scotland in October 2022 and provides vital information for Health Boards, service managers and individual clinicians to help improve care and standards for people with chronic kidney disease.

Public-facing information about neurological conditions is being developed for the NHS Inform website, to support education and self-management.

New or revised pages have been published on Functional Neurological Disorder, Multiple Sclerosis, Huntington’s Disease, Transverse Myelitis, Migraine, Myasthenia Gravis, Post-Polio Syndrome, Epilepsy, Motor Neuron Disease, and on eight types of Muscular Dystrophy. Further pages currently in development include Cerebral Palsy, Ataxia, Tourette’s Syndrome, Multiple Spinal Atrophy, Parkinson’s Disease, Dystonia and Progressive Supranuclear Palsy.

Through the Neurological Care and Support – a National Framework for Action 2020-25 , we have funded a number of projects which have developed or are developing information to support people to better understand their neurological conditions. I further refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which was published on 13 July 2022 for further detail.

In 2022-23 we supported the Neurological Alliance of Scotland (NAoS) to produce three information resources to support key workers and carers to guide people with neurological conditions to access Self-Directed Support (SDS).

The resources have been produced in conjunction with Self-Directed Support Scotland and are designed to raise awareness and understanding of SDS amongst three groups who are in a position to support people living with a neurological condition to access it: health and social care professionals, voluntary sector workers, and parents/carers of children with neurological conditions.

The resources were published by the NAoS in January 2023 at www.scottishneurological.org.uk and comprise:

• Self-Directed Support for adults: Information for Health and Social Care Professionals
• Self-Directed Support for adults: Information for the Voluntary Sector
• Self-Directed Support for children: What to Expect - Information for Parents

Our National Workforce Strategy for Health and Social Care supports the remobilisation and recovery of health and social care services and sets out priorities for recruitment, training and retention. We anticipate that the Strategy will be used by workforce, service and financial planners across Health and Social Care at all levels.

Through this Workforce Strategy, and the NHS Recovery Plan, we are investing in staff so that they have the right skill mix and career progression opportunities.

Through our National Advisory Committee for Neurological Conditions, we are identifying priorities to strengthen the neurological workforce alongside the National Workforce Strategy, Remobilisation Plans and Rehabilitation Framework. We have scoped neurological workforce priorities and work has commenced to address these with a focus on nursing, allied health professionals (AHPs), neuropsychology and neurophysiology.

A Transforming Roles paper on Clinical Nurse Specialists (CNS) was published in 2021. Through the Centre for Sustainable Delivery, an expert group has been reviewing how existing CNS competencies for neurological conditions such as epilepsy, multiple sclerosis, motor neuron disease and Parkinson’s align to Transforming Roles with a view to identifying challenges or barriers to accessing training to develop and sustain this workforce.

We are testing with NHS neurology services in the West of Scotland, a workforce capacity planning tool for Allied Health Professionals that has been developed through the Healthcare Improvement Scotland Excellence in Care programme to help ensure staffing levels are in line with safe staffing legislation. An AHP Education & Workforce review has been completed with recommendations from that review being published early this year. Thereafter work will commence on an implementation plan.

We are undertaking work to better understand specialist service provision for people in Scotland with neurological conditions, through which we aim to develop an approach to ensure reliable information and workforce data is available and informs actions.

This will consider existing roles, specialities, subspecialties, and developments in advanced Health Care Assistants, key workers and third sector speciality regarding neurological care. The process will also align with relevant commitments from the Neurological Framework, Transforming Roles agenda and the National Workforce Strategy.

In 2019, we published a Neurological Care and Support – a National Framework for Action 2020-25 , with a vision to ensure everyone with a neurological condition can access the care and support they need to live well, on their own terms.

The aims include improving the provision of co-ordinated health and social care and support, developing sustainable workforce models and ensuring high standards of person-centred care.

Since October 2020 we have we have awarded £2.1 million across three rounds of funding to 35 projects by NHS Boards, Health and Social Care Partnerships and third sector organisations working to achieve better outcomes for people living with neurological conditions.

I refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which contains details of work to support personalised models of care.

I refer the member to the answer to question S6W-13690 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers .