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The Scottish Government continues to be committed to improving the lives of autistic people in Scotland. We work closely with autism organisations in the third sector and the public sector and actively seek the views of people with lived experience on autism services. This is reflected in our “Towards Transformation” plan and in specific pieces of nationally funded work, such as the National Post Diagnostic Support pilot for Autistic People.

While the Scottish Government has overall responsibility for health and social care policy in Scotland, it is for the regional health & social care partnerships to determine the level of services that are required to meet local needs and to arrange an appropriate and suitable range of services to meet these local needs, as mandated under statute in the Public Bodies (Joint Working) (Scotland) Act.

Local Authorities are distinct corporate bodies whose powers are set out in statute and as such are entirely separate from the Scottish Government, however it is also the expectation of the Scottish Government that Local Public Bodies will engage with the third sector regarding local autism services.

The Scottish Government has an annual dedicated budget for our autism strategy programme of work supplemented by additional support provided throughout the pandemic. (£3.1m for financial year 2021-2022) However, a much wider range of Scottish Government and Local Authority funding helps to support autistic people through education and employment initiatives, for example, as well as social care funding.

a) Strategy funding is currently directly supporting autistic people through:

-The Increasing Understanding of Autism Programme - we are aiming to make Scotland a more accessible, inclusive, and understanding place for autistic people to learn, work and live. As part of this Programme, Inspiring Scotland, in partnership with the Scottish Government has distributed £470,709 of funding from December 2019 to date. Funding decisions include input from the autistic people on the autism advisory forums.

-A new National Post Diagnostic Support Service pilot launched on 1 December 2020. Following a diagnosis of autism, individuals, parents and carers living across Scotland are routed to appropriate support to understand and embrace their identity as an autistic person. So far, £394,645 has been allocated to various autism organisations to provide direct support to autistic people.

b) Sportscotland has agreed £572,500 of investment for 2021-22 for Scottish Disability Sport (SDS). SDS has the lead role for developing the quality of disability sport for disabled people in Scotland; this includes supporting autistic people. Sportscotland also invests in and supports a number of programmes and projects that deliver wider benefits to autistic people in their communities through sport. This includes £30,000 to Strathmore Rugby Club to support Scotland’s first autism-friendly rugby sessions, and £51,600 to the Changing Lives Fund project , delivered through a partnership with Forth Valley College and Falkirk Community Football Foundation, which focussed on young people with learning needs (including autistic young people.),

c) The information requested is not held or monitored centrally.

While the Scottish Government has overall responsibility for health and social care policy in Scotland, it is for the regional health & social care partnerships to determine the level of services that are required to meet local needs and to arrange an appropriate and suitable range of services to meet these local needs, as mandated under statute in the Public Bodies (Joint Working) (Scotland) Act.

Local Authorities are distinct corporate bodies whose powers are set out in statute and as such are entirely separate from the Scottish Government, however it is the expectation of the Scottish Government that Local Public Bodies will engage with autistic people and children, including their families where appropriate, in relation to decisions regarding the allocation of funding for autism services.

In addition, the Scottish Government works closely with COSLA and HSCPs in relation to the aims and objectives of our national autism strategies. Those strategies and the delivery of them is shared jointly between the Scottish Government and COSLA. We are currently looking at monitoring and engagement arrangements for the “Towards Transformation” plan involving a range of key stakeholders, including people with learning disabilities and autistic people.

While the Scottish Government has overall responsibility for health and social care policy in Scotland, it is for the regional health & social care partnerships to determine the level of services that are required to meet local needs and to arrange an appropriate and suitable range of services to meet these local needs, as mandated under statute in the Public Bodies (Joint Working) (Scotland) Act.

Local Authorities are distinct corporate bodies whose powers are set out in statute and as such are entirely separate from the Scottish Government, however it is the expectation of the Scottish Government that Local Public Bodies will operate their own autism strategies which will involve engaging with Autistic people in relation to decisions that affect them in an accessible way.

a) This is not monitored nationally.

b) This is a matter for local public bodies. The information requested is not held centrally.

Scottish Government expect Local Public Bodies to engage inclusively with autistic people about decisions that affect them. However, it is the decision of Local Authorities on what engagement should take place and how this is monitored.

While Scottish Government has overall responsibility for health and social care policy in Scotland it is for local Health & Social Care Partnerships to assess local need and arrange support services, as mandated under statute in the Public Bodies (Joint Working) (Scotland) Act. Local Authorities are distinct corporate bodies whose powers are set out in statute and as such are entirely separate from the Scottish Government.

While the Scottish Government has overall responsibility for health and social care policy in Scotland, it is for the regional health & social care partnerships to determine the level of services that are required to meet local needs and to arrange an appropriate and suitable range of services to meet these local needs, as mandated under statute in the Public Bodies (Joint Working) (Scotland) Act.

Local Authorities are distinct corporate bodies whose powers are set out in statute and as such are entirely separate from the Scottish Government, however it is the expectation of the Scottish Government that Local Public Bodies will engage with Autistic people and children, including their families where appropriate, in relation to decisions regarding the allocation of funding for autism services.

Scottish Government decisions on national funding in relation to the autism strategy, are taken in consultation with key stakeholders including autistic people through our national strategy leadership arrangements.

Autistic children and young people are supported through local Getting it Right Pathways and processes to have needs identified early and individualised plans in place. Support should be in place before, during or after diagnosis according to need and not diagnosis. All health boards have an autism or neurodevelopmental pathway, with a local plan for ‘post diagnostic support and information’.

The Children and Young People’s Mental Health and Wellbeing Joint Delivery Board has recently agreed the final version of the National Neurodevelopmental Principles and Standards of Care. The Principles and Standards of Care is for those children and young people who have neurodevelopmental profiles and support needs, including those with autism, and require more support than is currently available. The National Neurodevelopmental Principles and Standards will be published shortly.

The Additional Support for Learning Act places duties on education authorities to identify, provide for and review the additional support needs of their pupils, including those with autism. We provide free professional learning opportunities for practitioners, including the Autism Toolbox and Inclusive Practice online professional learning modules.

In addition, we published our Autism Action Plan in December 2020, setting out the actions we will take to improve the support to children and young people with autism in Scotland’s schools. We have made significant progress in implementing these actions and will formally report our progress in December 2021. Our work on supporting young people with Autism in mainstream schools is also supported by our guidance on the presumption of mainstream education.

The Scottish Government and COSLA jointly published our Learning/Intellectual Disabilities and Autism: Towards Transformation Plan in March 2021, which builds on existing autism and learning disabilities strategies. The plan looks at the actions needed to shape supports, services and attitudes to ensure that the human rights of autistic people and people with learning/intellectual disabilities are respected and protected and that they are empowered to live their lives, the same as everyone else.

The Children and Young People’s Mental Health and Wellbeing Joint Delivery Board has recently agreed the final version of the National Neurodevelopmental Principles and Standards of Care. The Principles and Standards of Care is for those children and young people who have neurodevelopmental profiles and support needs, including those with autism, and require more support than is currently available. The National Neurodevelopmental Principles and Standards will be published shortly.

The Additional Support for Learning Act places duties on education authorities to identify, provide for and review the additional support needs of their pupils, including those with autism. We provide free professional learning opportunities for practitioners, including the Autism Toolbox and Inclusive Practice online professional learning modules.

In addition, we published our Autism Action Plan in December 2020, setting out the actions we will take to improve the support to children and young people with autism in Scotland’s schools. We have made significant progress in implementing these actions and will formally report our progress in December 2021. Our work on supporting young people with Autism in mainstream schools is also supported by our guidance on the presumption of mainstream education.

The Scottish Government also directly funds the National Autism Implementation Team (NAIT) which supports NHS Boards to consider best practice and improve service in the redesigning of autism diagnostic services.

The Evaluation of the Scottish Strategy for Autism has been completed. The report is being finalised and is expected to be published soon.

Since 2011 the Scottish Government and COSLA have been jointly responsible for the national Scottish Strategy for Autism to ensure people live healthier lives, enjoy choice and control over the services they use, and are supported to be independent and active citizens.

In March 2021, Scottish Government and COSLA jointly published the “Towards Transformation” plan which reiterates our commitment to collaborate with delivery partners (including local authorities, the third sector and autistic led organisations) to reduce the inequalities experienced by autistic people.

The Scottish Government and COSLA are working with stakeholders, including HSCPs, Local Authorities, and people with lived experience on a new leadership structure to tackle the issues that people with learning disabilities and autistic people face. This new structure has lived experience at its heart.

Officials also regularly attend the Social Work Scotland Learning Disability and Autism sub group to engage with local learning disability and autism leads to share learning related to the Learning Disability and Autism strategies and to hear about local work.