- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 17 April 2019
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Current Status:
Answered by Jeane Freeman on 14 May 2019
To ask the Scottish Government what processes are followed ahead of a bone marrow transplant for people with mucopolysaccharidosis (MPS) to ensure that there is sufficient expertise and experience available to guarantee patient safety.
Answer
Normal governance mechanisms are in place to ensure that that treatments are planned by a multi-disciplinary team who are accredited specialists and who undergo regular revalidation.
The recommendation of any medical intervention is based on risk versus benefit considerations. These risks being those actual and immediate ones and those anticipated by the anticipated progression of the underlying condition leading to complications (including limited treatment options, increased complication rates and including worsening health compromise, disability and /or further limitation of life expectancy). Benefits from successful treatment have to be viewed within the context that all treatments (or having no treatment) carries inherent risks as described and that successful treatment (partial or complete) are expected to have short and long term benefits for the individual patient. The process of consent for treatment is a culmination of a process that seeks to address the risk / benefits described above. Accepting that there is a range in the way that any individual patient will be affected by an underlying condition, the nature of MPS is such that their management and any treatment offered has to be individualised. Bone marrow transplant (BMT) is offered on the basis of these risk / benefit assessments in the context of the utility of BMT compared with other treatment options and all treatments have limitations and therefore fluctuating risk / benefits.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 17 April 2019
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Current Status:
Answered by Jeane Freeman on 14 May 2019
To ask the Scottish Government which NHS boards automatically put in place an airway management plan for people with mucopolysaccharidosis (MPS) when they are admitted to hospital.
Answer
Scottish Government does not hold this information centrally. NHS Boards and healthcare professionals locally have responsibility for service delivery and patient treatment. For this reason NHS Greater Glasgow & Clyde Board would be best placed to provide this information. The contact details can be found online at https://www.nhsggc.org.uk/.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 17 April 2019
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Current Status:
Answered by Jeane Freeman on 14 May 2019
To ask the Scottish Government what the mortality rate is for people with mucopolysaccharidosis (MPS), and which NHS boards routinely provide this information when consulting patients regarding bone marrow transplant procedures.
Answer
Scottish Government does not hold this information centrally. NHS Boards and healthcare professionals locally have responsibility for service delivery and patient treatment. For this reason NHS Greater Glasgow & Clyde Board would be best placed to provide this information. The contact details can be found online at https://www.nhsggc.org.uk/.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 17 April 2019
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Current Status:
Answered by Jeane Freeman on 9 May 2019
To ask the Scottish Government what protocols are in place to ensure that the correct procedures are followed when treating people with mucopolysaccharidosis (MPS) who are at risk of allergic reactions, including those who have recorded an antibody build up during enzyme replacement therapy.
Answer
There are established guidelines for identification and reduction of allergic reactions throughout Medical services to minimise risk. Protocols include seeking a history of allergy before medical interventions at risk of producing an allergy.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 17 April 2019
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Current Status:
Answered by Jeane Freeman on 8 May 2019
To ask the Scottish Government how many bone marrow transplants for people with mucopolysaccharidosis (MPS) in each of the last 10 years have led to significant complications (a) during and (b) after the procedure, broken down by NHS board.
Answer
Based on data provided to the Information Services Division of NHS Scotland, less than 5 patients in Scotland with mucopolysaccharidosis (MPS) who received a bone marrow transplant had a reported diagnosis of bone-marrow transplant rejection between April 2006 and March 2018. It is not possible to break the information down further because the small number of patients carries the risk that in doing so individuals are identified. Data is held by NHS Greater Glasgow and Clyde which hosts the designated paediatric Stem Cell Transplantation Unit and is also recognised as the lead paediatric centre for Inherited Metabolic Disorders (IMD) in Scotland.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 24 April 2019
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Current Status:
Answered by Paul Wheelhouse on 8 May 2019
To ask the Scottish Government what progress is being made in updating the vessel replacement and deployment plan for the (a) Clyde and Hebrides and (b) Northern Isle ferry fleet, and by what date this will be published.
Answer
The Vessel Replacement and Deployment Plan (VRDP) annual report is currently being drafted.
Updated growth forecasts for Clyde and Hebrides routes have been produced, based on 2017 and 2018 carryings.
The report will also take into account the findings now emerging from the Outer Hebrides, Mallaig & Armadale, and Craignure STAGs.
A draft report will be circulated to key stakeholders at the end of May and will be available for discussion at the next meetings of the regional Ferry Stakeholder Groups in June 2019.
We aim to publish the final report by the end of August 2019.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Thursday, 25 April 2019
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Current Status:
Answered by Paul Wheelhouse on 8 May 2019
To ask the Scottish Government when it decided to set up its recently-established ferry industry advisory group; how the group’s (a) policy remit, (b) role and (c) membership differs from that of the Expert Ferry Group, and what action it is taking to ensure that trade unions will be represented on it.
Answer
The decision to change the name of the group from the ‘Expert Ferry Group’ to the ‘Ferry Industry Advisory Group’ was taken in order to better reflect the remit and role of the group.
There is no change to the remit or function of the Group and after consideration it has been decided, for the time being, to continue with the current membership.
The Transport Scotland website will be updated in due course and the membership, terms of reference and minutes of meetings will be published.
The Minister for Energy, Connectivity and the Islands separately meets with the STUC, and all the key unions with an interest in ferry services on a regular basis to discuss a range of relevant matters relating to the ferry services supported by the Scottish Government.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Thursday, 18 April 2019
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Current Status:
Answered by Paul Wheelhouse on 7 May 2019
To ask the Scottish Government for what reasons data relating to the operation of Pentland Ferries services is not available for inclusion in the annual Scottish Transport Statistics.
Answer
Pentland Ferries are a wholly private, commercial unlimited company, and as such it is their decision to take on what data is made publically available. However, I am aware that Transport Scotland officials have previously requested such information from Pentland Ferries without success.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Thursday, 18 April 2019
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Current Status:
Answered by Paul Wheelhouse on 7 May 2019
To ask the Scottish Government how many meetings (a) ministers and (b) officials have had with representatives from Pentland Ferries regarding the application of the road equivalent tariff on ferry services between Gill’s Bay and St Margaret’s Hope.
Answer
Between June 2016 and June 2018 there were a total of sixteen meetings between Ministers and/or Transport Scotland officials and Pentland Ferries regarding the potential introduction of reduced ferry fares to Orkney. Ministers participated in four of these meetings, with support from officials.
In addition, there have been a number of related telephone discussions which took place over the same period between Pentland Ferries and Transport Scotland officials.
- Asked by: Colin Smyth, MSP for South Scotland, Scottish Labour
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Date lodged: Wednesday, 24 April 2019
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Current Status:
Answered by Paul Wheelhouse on 7 May 2019
To ask the Scottish Government when the MV Isle of Lewis was last in dry dock for scheduled maintenance work prior to its mechanical failure at Castlebay ferry terminal, Barra, in April 2019, and how much this incident will cost to repair the vessel.
Answer
MV Isle of
Lewis’ most recent period in dry dock for scheduled annual maintenance work was
28 January to 14 February 2019.
The cost of repairs to the vessel after the
technical incident at Castlebay Ferry Terminal on Barra in April 2019 was
£4,189.