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The Scottish Budget for 2022-23 confirms funding of £4 million to deliver the Young Patients Family Fund.

Whilst there is no legal definition of elder abuse, the World Health Organisation has defined it as ‘a single or repeated act, or lack of appropriate action, occurring within any relationship where there is an expectation of trust, which causes harm or distress to an older person' ( Elder abuse (who.int) ). They note this can cover several types of violence, including but not limited to physical, sexual, psychological and financial abuse or neglect.

In general the Scottish Government does not hold information centrally on levels of elder abuse, as the Official Statistics on police recorded crime and criminal proceedings do not include details on whether the victim was an older person, or their relationship to the perpetrator. Police Scotland are in the process of introducing a new system to record crime, which once fully operational may allow for more detailed analysis within Scotland’s recorded crime statistics (including victim age for each type of crime committed). Going forward, statisticians will keep users of crime statistics informed of developments, as the new system rolls out during 2022 and 2023.

Some information on the age of victims and their relationship to perpetrators is available from topic based Official Statistics, including for example police recorded Domestic Abuse and Homicide. In 2020-21, victims of domestic abuse aged 60 and over had a rate of 12 incidents per 10,000 population (compared to 119 incidents for all ages). This has remained broadly stable over the past five years. Between 2016-17 and 2020-21 there were 36 victims of homicide in Scotland aged 60 or over. Of these, over two-thirds (69% or 25 victims) were known to the perpetrator (including partners or ex-partners, relatives and acquaintances). Furthermore the Scottish Crime and Justice Survey (SCJS) can provide estimates of some measures by age, however this only covers adults living in private households and excludes other settings such as care homes. In 2019/20, 6.9% of those aged 60 and over experienced crime in Scotland (including those not reported to the police), compared to 11.9% for all aged 16 plus. The victimisation rate for those aged over 60 has shown no change since 2014/15.

Some data is also available from the Care Inspectorate, which operates a complaints procedure for registered care services. For example in 2019/20 there were 35 upheld complaints about protection of people in care homes for older people. Further information on this process is provided in Care Inspectorate reports Complaints Annual Report 2019-20 final 12012021 (1).pdf (careinspectorate.com) and their published board papers (June 2021) Board_1706202_Final_Published.pdf (careinspectorate.com) .

The Young Patients Family Fund provides valuable financial support to eligible visitors of inpatients up to the age of 18 who are being treated in Scotland.

We recognise it is not possible to deliver all services and treatments in all locations. That is why, where patients are required to travel we already expect boards to take a patient centred approach and to have in place arrangements to allow and support people to receive treatment elsewhere. In addition, financial support for travel is available for patients and authorised escorts attending hospital appointments, in line with eligibility criteria and medical requirements.

Any decision on whether or not to introduce screening for Spinal Muscular Atrophy (SMA) in Scotland will be guided by the recommendations of the UK National Screening Committee (UK NSC), an independent expert advisory group which advises Ministers and the NHS in all four nations of the United Kingdom on screening policy. The UK NSC last reviewed SMA in 2018 and did not recommend screening for this condition.

The UK NSC is expected to review SMA screening later this year, taking into consideration the latest evidence since the previous recommendation in 2018. Should the UK NSC recommend screening for this condition, the Scottish Screening Committee, in consultation with medical experts in this field, will advise Scottish Ministers on the most appropriate future course of action for Scotland.

Scottish Government officials have been involved in initial discussions with academics and clinicians about the potential for a Scottish research study of newborn screening for Spinal Muscular Atrophy (SMA), and are awaiting a fully developed proposal. Any decision thereafter to run an SMA pilot will depend on the expert advice of the Scottish Screening Committee as well as the organisations that oversee implementation of any changes to the newborn screening programme.

I refer the member to the answer to PQ S6W-08047 on 10 May 2022. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Scottish Government does not yet hold this data for 2021-22. We have asked for this information as part of routine monitoring of implementation of the Young Patient’s Family Fund, from Health Boards.

Funding under the Young Patients Family Fund is available to eligible visitors of all young inpatients. Requirement for in-patient care can vary by condition and type of treatment, and some patients may have multiple conditions or treatments over time. For these reasons we do not collect data on individual conditions.

In its first year of operation, a total of £2,056,179 was paid out to Scotland’s 14 territorial Health Boards for the Young Patients Family Fund in 2021-22.

Scottish Government does not yet hold data on how many individual people have benefitted so far.

Salus and Working Health Services Scotland (WHSS) provide return to work and occupational health services for people who have health conditions or injuries that are impacting on their work, including long COVID. These services are adapting to meet the additional needs required of them due to the pandemic. Currently there are no plans to develop an occupational health return-to-work support service for people with long COVID.

NHS inform provides people living with long COVID with clear and accessible guidance on managing their symptoms. It includes specific advice on navigating a return to work and signposts to information developed by the Society of Occupational Medicine and the Advisory, Conciliation and Arbitration Service.