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To date, significant work has been undertaken to develop robust criteria for a national AI solution to assist with identifying patients who may benefit from a thrombectomy.

A tendering process has commenced and the suitability and affordability of AI solutions will determine whether Scottish Government proceeds with procurement.

The commitment in the Stroke Improvement Plan to publish a plan for further development of the national thrombectomy service in the second half of 2023 was published in December 2023, available at: Thrombectomy Service Update and Expansion Outline

It should be noted that, since publication, the National Thrombectomy Programme Board has, on the advice of NHS National Services Division, moved away from an options appraisal approach in favour of maximising access to thrombectomy and a stepwise approach to service expansion.

A final report on the Neurological Care and Support in Scotland: A Framework for Action 2020-2025 will be published by the Scottish Government when the Framework reaches the end of its agreed lifespan. An assessment of future priorities for neurological conditions will be included.

The aims contained in the document Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025 are applicable to healthcare delivery across Scotland. Through this we have supported a number of national initiatives to improve care and reduce variation, including:

• Self-evaluation by all NHS boards against the General Standards for Neurological Care and Support 2019. Development of national care pathways for headache and Functional Neurological Disorder, with care pathways for further conditions in development
• Agreement of a Business Case and funding to adopt the Scottish Epilepsy Register across Scotland, improving the safety and quality of care for people with epilepsy
• Development of a neurology nurse specialist competency framework
• Formation of collaborative improvement networks which include NHS boards, Health and Social Care Partnerships, third sector organisations and people with lived experience to encourage consistent adoption of the successful approaches funded through the Framework
• Development, by third sector partners, of a toolkit for the consistent commissioning of social support for people with epilepsy
• Improved provision of public information on individual neurological conditions through the development and/or revision of 23 NHS inform webpages
• Through national charities, development of nationally-accessible sources of self-management support for people with MS, spina bifida hydrocephalus, progressive supranuclear palsy, cerebral palsy and non-epileptic seizures
• Re-development of the internationally recognised neurosymptoms.org web resource to support people with Functional Neurological Disorder
• Dissemination of nationally-accessible clinician education resource for ME/CFS

All Health Boards in Scotland receiving baselined funding from the Scottish Government toward their neurology services. As part of Planned Care funding, the Scottish Government has also invested £217,000 in total towards improving waiting times in NHS Tayside and NHS Greater Glasgow and Clyde.

Through the Neurological Framework, the Scottish Government has given direct investment to numerous territorial Health Boards to undertake projects focusing on neurological care, in line with the Framework’s commitments. Health Boards that have received direct investment are:

• NHS Ayrshire and Arran
• NHS Forth Valley
• NHS Grampian
• NHS Greater Glasgow and Clyde
• NHS Lanarkshire
• NHS Lothian
• NHS Orkney
• NHS Tayside

Third sector organisations have also been awarded funding to work in partnership with a number of statutory organisations to better integrate services, including NHS Greater Glasgow and Clyde and NHS Fife. The Migraine Trust has worked in partnership with seven NHS boards to improve treatment for migraine in community pharmacy.

A full list of projects funded through the Neurological Framework can be found here.

The Managed Service Network for Children and Young People with Cancer (MSN CYPC) are currently working with Young Lives vs. Cancer (YLvC) to take forward learning from the NHS England and Picker Institute U16 Cancer Patient Experience Survey, to see if this can be developed for children and young people with cancer in Scotland.

Additionally, the MSN CYPC provides a range of patient experience support services such as the Youth Advisory Forum which provides children and young people with cancer with the opportunity to share experiences with each other as well as identifying gaps and improve the quality of services by providing feedback. The Parent, Carer and Families Forum, also facilitated by MSN CYPC, gives a voice to the youngest children with cancer, and their support networks which enables their views to also be captured.

Public Health Scotland (PHS) publishes annual data on 16 to 25 year olds with cancer in Scotland in their incidence statistics. The latest report is available on the PHS website

PHS also publishes information on cancer in children (ages 0 to 14) and young people (ages 15 to 24) in Scotland

Children and young people with cancer in Scotland 9 May 2023 - Children and young people with cancer in Scotland - Publications - Public Health Scotland

Health Boards are expected to support patients and their families in identifying and accessing available support. Financial support for travel is available for patients and authorised escorts, according to eligibility criteria and medical requirements, through schemes such as the Patient Travel Expenses Scheme (PTES) and the Highlands and Islands Travel Scheme (HITS).

Scottish Government has funded Young Lives Vs Cancer to provide practical advice and emotional and financial support to young people diagnosed with cancer and their families. This includes advice on potential welfare benefits as well as direct grants.

Further to this, we are working in partnership with Macmillan to improve the service we offer patients with cancer through the Transforming Cancer Care Programme (TCC). This partnership with Macmillan is worth £27 million and is the first of its kind in the UK. The programme ensures that every patient with cancer in Scotland has access to a specialist key support worker, who can provide emotional, financial, and practical support.

The dedicated Cancer Strategy for Children and Young People in Scotland 2021- 2026 was published in 2021. This strategy emphasises the Scottish Government’s commitment to improving the distinct care and support services required for children and young people with cancer. Scotland is the only UK-nation to have in place a cancer strategy dedicated to children and young people with cancer.

Our draft Budget 2025-2026 includes a record £21 billion investment in health and social care services, including for services for children and young people with cancer.

The draft budget published on 4 December 2024 includes new investment of £4.5 million to deliver new specialist support across the country for long COVID, ME, Chronic Fatigue, and other similar conditions.