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Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 5 May 2021
  6. Current session: 12 May 2021 to 13 March 2025
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Displaying 3105 contributions

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Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

On that basis, do we agree to write to the Scottish Government expressing our concern about the fact that we have no data to quantify the use of a process that is meant to be a recourse for the public, that we point out that simply telling us that there is no way to quantify that falls short of the adequate security that the process is intended to provide in the first place and that we ask what its attitude to that is?

Members indicated agreement.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

I agree. I felt that a distinction emerged in the evidence session between what is set out in this petition and the use of polypropylene mesh in transvaginal procedures, which the Scottish Government has stayed for the moment. I do not know whether the petition’s ultimate aim, which is an outright ban on all mesh procedures, was necessarily validated by the evidence that I heard, but what came out of the evidence was a number of other issues that colleagues have identified and which we should continue to explore. Again, those issues are informed consent, alternative options with regard to tissue and, more generally, the materials that are in use and the reviews that are taking place.

On this occasion, there is real merit in continuing with the petition and exploring the issues that colleagues have identified, but recognising that we are doing so as a consequence of the evidence session and not necessarily in the expectation of its leading to the outcome that the petitioners are seeking, which is a ban on all such procedures.

If members feel that that is a reasonable assessment, do we agree to keep the petition open and proceed on that basis?

Members indicated agreement.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

Would you like to keep the petition open or to close it with that action in place?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

I am happy to do that.

Citizen Participation and Public Petitions Committee

New Petitions

Meeting date: 17 November 2021

Jackson Carlaw

I do not mean to generalise, but my experience with health boards, particularly those with no such appeals processes, is that a determination is made and anyone who then tries to pursue any alternatives meets a blank wall. The absence of an appeals process in this case is a failing, because, with the example that Rhoda Grant has expressed an interest in, a subjective view seems to have been taken with regard to excluding this body, and that is that—even though it is, as Ms Grant seems to be saying, the body that local people are using to try to make these kinds of representations.

Citizen Participation and Public Petitions Committee

New Petitions

Meeting date: 17 November 2021

Jackson Carlaw

We will, in the first instance, try to get some idea of the timeline for the work on developing an appeals process, as we would not want that to be open ended.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

I thank the petitioners for their contribution over a sustained period of time. Considerable progress has been made, and they can take a lot of congratulation and satisfaction from the fact that that is the case. As David Torrance has suggested, we will encourage the Scottish Government to continue to engage as the various projects progress.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

Good morning and welcome to the seventh meeting in session?6?of the?Scottish Parliament’s Citizen Participation and?Public Petitions Committee. We will be considering two items: continued petitions and new petitions.

The first petition that we are considering, PE1662, on improving testing and treatment for Lyme disease and associated tick-borne diseases, is of long standing. It was lodged by Janey?Cringean?and Lorraine Murray on behalf of the Tick-borne Illness Campaign Scotland. It calls on the Scottish Parliament to urge the Scottish Government to improve testing and treatment for Lyme disease and associated tick-borne diseases by ensuring that medical professionals in Scotland are fully equipped to deal with the complexity of tick-borne infections.?

When the petition was last considered, in September, we agreed to seek an update from the Scottish Government?on the outcome of the round-table event that was due to be held to bring together clinicians, patient representatives and public health experts to discuss testing, treatment and the raising of awareness;? on any progress that had been made in establishing an infectious diseases managed clinical network; and on the steps that were being taken by the Scottish Government to?encourage?research into Lyme disease.

In its submission, the Scottish Government confirmed that?two?round-table events have taken place?and, as a result?of those, two sub-groups have been set up—on raising public awareness and? on the education of healthcare professionals. Both sub-groups have met in recent weeks.? Work to establish an infectious diseases managed clinical network has been?delayed?due to the Covid-19 pandemic.?On research, the Scottish Government?has agreed that it will work with?the Scottish Lyme disease and?tick-borne?infections laboratory at Raigmore hospital to consider potential improvements to testing methods and processes.?

Meanwhile, the petitioners suggest from their perspective that?the meetings that have been held so far have been promising but that more is needed.?Although they were involved in the round-table events and the sub-group on public awareness, they are not represented on the sub-group on the education of healthcare?professionals.?

The petitioners stress that a key aim of their petition is to improve?treatment for those who are chronically ill?with Lyme disease or another tick-borne disease, and they suggest that it is crucial to ensure that healthcare providers receive adequate training to help them recognise and treat such conditions.? ?They make a number of suggestions?for suitable training resources.? They suggest that the establishment of an infectious diseases?managed clinical network?is not a suitable?alternative to creating specialist treatment centres. They feel that, although there has been progress in a number of areas, certain elements of their petition have not been addressed.?

In passing, I mention the interest in the petition, over time, from our colleague Alexander Burnett, who held a members’ business debate on the topic.

It seems to me that a considerable amount has been achieved. I ask David Torrance to remind us newbies on the committee of the work that was undertaken last session on what is a long-standing petition.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

The clerks tell me that we have not done that previously. As that is the case, it is a sensible suggestion.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 November 2021

Jackson Carlaw

We will investigate that.