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Seòmar agus comataidhean

Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 4 May 2021
  6. Current session: 13 May 2021 to 6 March 2026
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Displaying 4516 contributions

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Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 April 2024

Jackson Carlaw

The Scottish Government provided the committee with information back in August of last year. In that submission, the Government noted its intent to publish an initial plan on options for changes to the 2003 act by the end of 2023. Moreover, last November, the Health, Social Care and Sport Committee followed up on the recommendations from its inquiry into perinatal mental health services.

The Minister for Social Care, Mental Wellbeing and Sport provided an update in January in which she noted that a draft service specification for perinatal mental health services was being developed and that the NHS National Services Scotland’s report on mother and baby unit provision was with the Scottish Government for consideration. The update also noted that the Scottish Government was continuing to collaborate with mother and baby units to conduct a review of the mother and baby unit family fund.

Before I ask committee members to say how they think we might proceed, I invite Tess White to address the committee.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 April 2024

Jackson Carlaw

Are we content with those suggestions? Are there any other complementary suggestions from members of the committee?

Ordinarily I would not invite suggestions from non-committee members, but if you have a suggestion for some further action, Ms White, I am sure that the committee would be happy to hear it.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 April 2024

Jackson Carlaw

I am sure that colleagues would be happy to include the latter and to reflect on the former.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 17 April 2024

Jackson Carlaw

To summarise, we are taking a decision in principle to close the petition, but we are deferring the taking of a formal decision until the regulations are introduced, or at least until we are told that regulations will be introduced, at which point we will either close the petition or inquire why the regulations have not been introduced.

Does that meet with members’ approval?

Members indicated agreement.

Citizen Participation and Public Petitions Committee

New Petitions

Meeting date: 17 April 2024

Jackson Carlaw

I thank the petitioner, but, for the reasons stated, I hope that they will understand the limit on how we can proceed.

Citizen Participation and Public Petitions Committee

New Petitions

Meeting date: 17 April 2024

Jackson Carlaw

I am particularly interested in Mr Choudhury’s suggestion in relation to the Care Inspectorate, which I think is quite right. “Adequate and suitable” is very vague terminology, and I would have thought that it is certainly not a benchmark against which any definable standard introduction could be monitored.

Citizen Participation and Public Petitions Committee

New Petitions

Meeting date: 17 April 2024

Jackson Carlaw

We will close the petition. Unfortunately from the petitioner’s point of view, we have to have a realistic expectation of taking matters forward, and the Government advice is very clear in relation to vaccinations and the empirical evidence basis for them.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 6 March 2024

Jackson Carlaw

Fergus Ewing mentioned his association with you over 25 years. Have you seen a change in the centres of gravity in organisations such as NatureScot in the time that you have been engaging with them?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 6 March 2024

Jackson Carlaw

You said that you were in Teesdale yesterday. I have visited Teesdale and I seem to recollect that it is renowned for its waterfalls. Am I in the right place?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 6 March 2024

Jackson Carlaw

PE1952, which was lodged by Jane Clarke, calls on the Scottish Parliament to urge the Scottish Government to instruct Scotland’s NHS to form specialist services, training resources and a clinical pathway for the diagnosis and treatment of patients exhibiting symptoms of autonomic nervous system dysfunction, or dysautonomia. We last considered the petition at our meeting on 17 May 2023.

A recent submission from the Minister for Public Health and Women’s Health highlights the results of a questionnaire to a sample of general practices, which included questions on the clinical guideline “Managing the long-term effects of COVID-19”. The survey found that 60 per cent of responding practices were aware of the guideline and 25 per cent were aware of the implementation support note. The content of the implementation support note is being reviewed and updated.

The University of Leeds has been contracted to support the initial evaluation of long Covid services in Scotland. That work will provide an analysis of demand and capacity and of longer-term outcomes for patients, and will compare differences in service models where possible.

The petitioner has stressed that the petition concerns all patients with dysautonomia and not just those with long Covid. She notes that there are no specialist autonomic clinics in Scotland and that cardiology consultants have told PoTS UK that they do not have the expertise to manage patients with dysautonomia. The petitioner welcomes the training resources that are available to healthcare professionals but would like to make it clear that those are not a suitable substitution for specialist services.

Do members have any comments or suggestions for action?