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Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 4 May 2021
  6. Current session: 13 May 2021 to 8 November 2025
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Displaying 1011 contributions

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Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

I think that the member might be referring to my amendments in a later group, which would alter the age to 25. I hear what he is saying, but I wonder whether he thinks that there is a discussion to be had about the issue. He talks about rights but, earlier in his contribution, he talked about capacity, too. There is an increasing body of evidence on cognitive development and neurodevelopment that shows that people’s attitudes and ability to make decisions—that is, their cognitive ability—do not fully mature until the age of 25. If capacity is a central issue, there is at least a discussion to be had about the age limit to be set, because we absolutely want to ensure that people are exercising this right with the fullest of capacity. Does the member accept that those are the parameters of this debate?

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

My intervention is further to that point. I echo the questions that Bob Doris just raised and will add to them. As it stands, from the member’s understanding, what would prevent someone with a decade or more to live from exercising their rights under the bill? That question follows on from the very powerful point that Pam Duncan-Glancy made.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

Bob was first.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

I wonder whether Jeremy Balfour might agree with me in that, although I understand the contention that precise prognosis is very difficult and is a matter of judgment, the reverse is also true: we are asking medical practitioners to interpret what we mean by the terms, as they currently stand, of “terminal” and “progressive”. Without putting the definitions in the bill, we are leaving them open to interpretation either by practitioners or by the people whom we ask to draw up regulation and guidance. In a sense, we are not avoiding that decision; we are simply pushing it to different places and, potentially, leaving it more open.

I understand that “prognosis” is not precise, and I wonder whether the member agrees with me. I am concerned by some of the notions shared this morning that, without any attempt to define immediacy, assisted dying could be exercised by people who may have years to live. I understand that time may be an imperfect way of defining immediacy, but it is a way of defining it. We potentially run into real risks of exactly the expansion that Jeremy Balfour has just set out.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

I understand the member’s point—you do not lodge an amendment that proposes a time boundary without thinking about such things. On the other hand, the principle is that we want the right to be exercised by people whose death is imminent. Jeremy Balfour put that in terms of weeks or months. How do we capture that correctly unless we insert a time boundary? Is there another way to capture it? We are not setting an absolute threshold; we are literally just capturing the sense that the right is to be exercised by people whose death is very likely to be in the coming weeks and months rather than years away.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

I am very sympathetic to the member’s points about anorexia nervosa, and I think that we need to put safeguards in place in that respect. That said, I wonder whether there are technical problems with the reference to

“voluntarily stopping eating and drinking”,

given that there are a number of conditions, including digestive ones, that might result in people not being able to eat or drink and being required to use enteral feeding, have percutaneous endoscopic gastrostomy tubes and so on. I wonder whether the way in which the member has captured that issue might have unintended consequences.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

Will the member accept my point that, in principle, rather than necessarily establishing an accurate prognosis, setting a time limit is about trying to set a time boundary around the immediacy of the expectation of the end of life? Does he imagine that such time bands would at least have to feature in guidance so that we do not run the risk of expansion? In other words, how does one judge that immediacy if we do not put it in the bill or guidance?

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

Will the member give way?

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

At the outset, I state that I broadly agree with much of what Jeremy Balfour has set out. To my mind, the debate has been marked by two substantial features both for those who are advocating for the bill and for those who are speaking against it, in that we all want to provide dignity and empowerment for those who are in the final stages of their lives and who may well be suffering from conditions and diseases that leave them in an intolerable situation. On the other hand, we also want to ensure that we do not foster a culture in which people feel as though they are under pressure to end their life or that there is an expectation that they do so in certain circumstances, particularly when that involves things such as mental illness, disability and other such issues, as Jeremy Balfour has set out. That is why I think that the definition of terminal illness is so important.

I understand that definitions are always difficult and I understand the reasons why the definition in the bill was arrived at but, to my mind, the key point is that the bill’s provisions must be used only when a person’s death is imminent and expected. If I were to put it glibly, in a sense, we all have a terminal and progressive condition, but the immediateness of it is relative. That is why I think that it is important to include some sort of time boundary, not just for clarity but to prevent judicial expansion, which we have all been very concerned about, based on situations in other countries. I think that there is an inherent issue with the accuracy and effectiveness of time limits. The point is not necessarily about the accuracy of a prognosis; it is about clarity on the immediacy of the likelihood of a person’s death and whether that is a reasonable expectation. Including a time boundary could provide absolute clarity that the likelihood of a person’s death has some immediacy, so that the time period is counted not in years or decades but in weeks or months.

Jeremy Balfour’s amendment 143 sets out the time boundary as three months, which I think is probably too short. If we are leaving these decisions to be made only when death is very proximate, that could preclude people from making a decision as calmly and in as informed a way as possible, although I think that three months would be better than no time limit. If my amendment 4 is pre-empted, I will understand. Whether the committee decides on a timeframe of three months or six months, we need a time limitation in order to set out clearly that there should be the expectation of the likelihood of a person’s death being imminent.

Health, Social Care and Sport Committee [Draft]

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 2

Meeting date: 4 November 2025

Daniel Johnson

I wonder whether Bob Doris would agree with me on this. There are two points here: one is the principle, and one concerns the technical drafting. On the principle, as he has pointed out, the policy memorandum seems to suggest that the bill is about providing a possibility for people for whom death is very near or imminent. That is different from the technicalities of how we capture that. However, it is important to establish whether we want to capture that immediacy in the bill itself or leave it to further regulation and guidance. Does the member agree with me that, even if the committee rejects the technicalities of what has been drafted, we need some understanding of whether members accept the principle?